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A Community Forged By Loss and Love — and Photographs That Found Joy at the End of Life

Discussion in 'General Discussion' started by Dr.Scorpiowoman, May 29, 2017.

  1. Dr.Scorpiowoman

    Dr.Scorpiowoman Golden Member

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    No matter how many times her cancer returned, Mom found a way to live her life and not take it too seriously.


    The emails poured in by the dozen, day after day after day. They came from parents and children, from violin makers and doctors, from sisters, husbands, colleagues, teachers. Some were spare, just a line or two. Others went on for pages, full of emotion.

    I read them all, absorbing the stories of grief, loss, hope.

    All these intimate emails — from strangers around the world — flooded my inbox after a piece in the New York Times in late 2013 featured my photos of my parents, Howie and Laurel, and their parallel treatments for stage 4 cancer. They went through this final, sometimes brutal, stage of life side-by-side, and as a photographer — and their daughter — I documented every moment.

    Photography gave me a familiar context and a language through which I could understand this terrifying and profound reality unfolding before me. It allowed me to be close to my parents, and at the same time, safe, at a distance, behind the lens.

    Now, four years after my father’s death and three years after my mother’s, I’m preparing to publish “The Family Imprint,” a book of photographs, journal entries, conversations, and mementos from that period. As I reflect on that time, I’ve found myself returning to those emails from strangers — all those stories from people who went through similar trials.

    I had never experienced this kind of connection before. Everyone had their own experience to share. And the more I heard, the more I began to understand what I had been through.

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    “So my philosophy on life is, it’s a gift, and any amount of years is a gift — and nobody promised me longevity. No one promised me success. Nobody promised me love. Nobody promised me good friends. Nobody promised me a great career. And yet, I’ve had all these. So, I’m way ahead in the balloting and in accounting. So I have no regrets because without any guarantees of those things, I’ve been able to achieve them and I’ve been blessed with them for a long long time.”— Dad
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    Late one evening, Dad shaved Mom’s head, knowing that the hair would start falling out on its own in the upcoming weeks as a side effect from the chemotherapy.

    My photographs don’t tell a bleak story about cancer and death. That was not our story.

    My photographs reframe the conversation around death by focusing on the opposite: joy, family, and what it means to truly live. I believe this is what drew so many people from around the world to write to me.

    As my story continued to spread, getting picked up and republished everywhere from major news outlets to small-town funeral blogs (they do exist), I got emails written in Spanish, French, German, and Italian. I answered as many as I could, exhaling deeply after every reply I mustered the strength to send. I know I didn’t have to reply, but I wanted to. I needed to. I felt it was a great privilege that complete strangers felt so empowered by my story that they trusted me with theirs.

    Many opened their emails: “I’ve never shared this with anyone before …”

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    A letter from my mom six months after I began documenting her recurrence of cancer in 2010.
    There’s an interesting paradox when it comes to email. On one hand, it’s entirely impersonal. The most you can tell about a person’s penmanship is if he or she is the type to put one space or two after a period. The warmth of thematic postage stamps and heart-dotted i’s is missing. On the other hand, email makes the world much smaller; it’s so much quicker to connect and so much easier to share deeply personal stories.

    Such was the case with Maggie, who emailed me in 2016. Just a few years younger than I was, she had a similar story, having lost both her parents to cancer at an early age.

    Her subject line: Your Story; My Story.

    “Your story related to mine on such a level that no one understands,” she wrote.

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    Weak from chemotherapy, Dad floated effortlessly around the pool during a quick trip to a warm climate, an escape from the reality of his life back home.
    My heart swelled with a deep feeling of empathy and, at the same time, grief. Again, the paradox runs deep. In reading her note, I wondered what it was about our conversation that made me feel so comfortable and so at ease, though it was pain that had brought us together.

    I realized, later, that it was community. I was craving community, a sense of belonging and understanding. Apparently lots of people — like Maggie — felt the same.

    It all adds up, really. In high school, I was the person who signed up, and ultimately led, every club and team available: photography, yearbook, soccer, basketball, tennis, peer leadership — you get the picture. I yearned to become a part of these different communities as I began to shape and define who I was at 18. Ten years later, I became card-holding member of a new club, one I had not imagined I’d ever join: the orphan club.

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    The author (left) and her family on vacation in 1990.
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    The author with her parents at her wedding rehearsal in 2013.

    As it turns out, this would be the largest and most meaningful club I had ever joined.

    In the years that I watched my parents decline, I felt completely alone. My world was crumbling beneath me and my friends couldn’t directly relate. I had my siblings, which was and will always be a tremendous gift, but they were also dealing with their own grief.

    It wasn’t until the emails started to stream in that I was reminded of how connected we all really are. I was not alone, after all.

    Subject line: Both parents stage 4… I can’t believe there is someone else out there like me.

    This was from my friend Kristin. We’ve been emailing for years now, often with long gaps in between notes, due to the usual distractions of life.

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    With each day passing, Mom became almost childlike and we, her children, became her caregivers. There were many moments of uncertainty as she lost her ability to communicate. Dying at home meant there were no machines or charts masking the reality of these moments.
    In that first email, back in 2015, Kristin wrote: “I have never heard of anyone else having two parents with cancer, and most certainly not stage 4 at the same time… Just seeing that you went through this has honestly given me some hope, whether or not we even talk/communicate.”

    I responded, of course.

    Lengthy email after email, we went back and forth, sharing our fears, our joys, updates on family, and our new and shared perspective on life. We became extremely close, which is amazing and completely odd as we’ve never met in person.

    I have no idea what my friend Kristin looks or sounds like; all I have to go on is an email address and a personal story in font size 12.

    It is a strange and beautiful experience to feel so unbelievably connected and close to someone in this way. Perhaps not really knowing each other has allowed us to be even more open and vulnerable. We had nothing to lose and everything to gain.

    And so we email back and forth. We share our stories.

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